The Parkinson’s Foundation has received a grant from the Robert W. Woodruff Foundation to expand genetic testing, genetic counseling and educational research opportunities for Black and African American people with Parkinson’s disease (PD). Through PD GENEration: Mapping the Future of Parkinson’s Disease, the grant supports efforts to increase community participation in research in collaboration with Morehouse School of Medicine in Atlanta.
“We are grateful for the generosity of the Woodruff Foundation in helping us expand PD GENEration and provide further support to Black and African American people in the Parkinson’s disease community,” said Parkinson’s Foundation Chief Scientific Officer James Beck, PhD. “PD GENEration is designed to be inclusive and accessible to all populations and this grant allows us to elevate the study’s reach through our partnership with Morehouse.”
The initiative will provide free genetic testing and genetic counseling to Black and African American participants with PD, conduct educational seminars introducing the role of genetics in PD, and further empower people with PD by determining eligibility for relevant clinical trials. No two people with PD are identical, so ensuring participant diversity and inclusivity in research is critical to accelerating breakthroughs toward a cure.
Through PD GENEration, the Parkinson’s Foundation works to increase representation of marginalized population groups in research and aims to make no-cost genetic testing accessible to people with PD. Working in collaboration with Chantale Branson, MD, the first-ever movement disorder specialist at Morehouse School of Medicine, the Parkinson’s Foundation is committed to improving health disparities in the PD community.
“By making genetic testing, counseling, and education more accessible to Black and African American people with PD through this partnership, we hope to significantly improve clinical outcomes and increase research participation,”…
Read the full article here